If the company responsible for running your test is sold, whatever you signed loses significance due to the privacy policies of the company. Despite most of these privacy policies stating they will notify you of any changes, you would have to keep in constant contact with the company to ensure you were actually aware of these changes. The people willing to do this would be far and few between. Unfortunately, even if your name is not located within the database, this does not mean other databases cannot be used to determine your identity. In one specific case, a woman had a DNA test run. She found out she had a half-sibling. Although she was very excited about this news, this type of information would devastate numerous individuals.
When we speak, co-founder Hamish Grierson describes Thriva as “a lifestyle brand with medical-grade testing at the back end”, an opportunity for “people to see themselves as consumers rather than patients”. Grierson gives examples of people who have benefited from Thriva testing, sometimes picking up early on serious issues. As for alarming people, Grierson says that Thriva has on-site facilities to discuss results and is intended to be “complementary to the NHS” rather than replacing it: “If there are questions we can’t answer, we’re very clear that people should pick it up with their GP.”
On all platforms except for National Geographic, you can initiate a search for relatives, though some services let you upload your National Geographic results for further analysis. The software continually searches for DNA matches as more people share their results. This feature may be useful if you're building a family tree or looking for relatives you've never met; otherwise, it may more of a nuisance. You can opt in or out at any time, and the DNA service doesn't share your contact information. Relatives can message you through the software, though. If you already use genealogy software, you may be able to download your results and upload them into your preferred program. Otherwise, AncestryDNA and others featured here have family tree software that you can easily link.
My wife recently purchased a dna testing for me. All I wanted to know was if I am part Native American, and or part Jewish. Well I was given a bunch of numbers and letters ans I found my parents haplogroups which were M and R1b but that in itself does not tell me anything else. Would someone explain to me what the breakdown means. How do you know if you are part of something with a bunch of letters? what letters or numbers in the group m or R1b would indicate american heritage?
Although FamilyTreeDNA is the only DNA testing company openly working with law enforcement, other DNA companies don’t necessarily keep your DNA information private. Many direct-to-consumer DNA testing companies sell your data to third parties. For example, 23andMe shares customer data with pharmaceutical giant GlaxoSmithKline, which uses the information to develop medical treatments. In this case, you can opt out of having your DNA information used for research, and the data is shared only in aggregate.
Miscellaneous, fun DNA tests: On the not-so-serious side of at-home DNA testing, there is a company that offers wine recommendations based on your genes. Vinome is part of the Helix marketplace. It creates a personalized taste profile for you based on your genes and offers a curated list of wines you can buy through the service. If you buy and rate the wines, Vinome hones in on your preferences and matches you to new products.
A few of the DNA tests we tested, including the National Geographic Geno 2.0, use genetic sequencing instead of genotyping. Sequencing is newer in the mainstream direct-to-consumer DNA testing market, as it used to cost more and take much longer to sequence a person’s DNA. Sequencing identifies the exact makeup of a certain piece of DNA – be it a short segment or the whole genome. The Helix tests sequence the Exome, which are the parts of the genome responsible for protein production, plus several other regions of interest. DNA sequencing gives more information overall and has more uses in medical testing than genotyping. In the future, more DNA kits may move from genotyping to DNA sequencing as the technology gets cheaper and faster, but for now both are effective ways to look into your geographic ancestry.
Which is all very well, but do these kits work and deliver the service they promise and what about the wider ethics and implications of home genetic testing? Is it always wise for generally under-informed, under-prepared consumers to meddle in the highly complex, nuanced arena of genetics, risking confusion, complacency or even outright panic and anxiety when confronted with ostensible “bad news” (which may not even be true)?