If the company responsible for running your test is sold, whatever you signed loses significance due to the privacy policies of the company. Despite most of these privacy policies stating they will notify you of any changes, you would have to keep in constant contact with the company to ensure you were actually aware of these changes. The people willing to do this would be far and few between. Unfortunately, even if your name is not located within the database, this does not mean other databases cannot be used to determine your identity. In one specific case, a woman had a DNA test run. She found out she had a half-sibling. Although she was very excited about this news, this type of information would devastate numerous individuals.
Another key customer type could be people like myself, hurtling through middle age, perhaps just starting to feel the cold bony hand of mortality clamp down on their shoulder. People, who, in the past, may not have exactly prioritised their health, who are starting to wonder what may be in store for them and who are in the (“Hypochondriacs R Us”) market for some hard-core insight and advice.
Which is all very well, but do these kits work and deliver the service they promise and what about the wider ethics and implications of home genetic testing? Is it always wise for generally under-informed, under-prepared consumers to meddle in the highly complex, nuanced arena of genetics, risking confusion, complacency or even outright panic and anxiety when confronted with ostensible “bad news” (which may not even be true)?
Specific tests for your father’s family include ‘Y-DNA’ tests which focus on the ‘Y chromosomes’ in your cells’ nuclei, passed down from father to son. Specific tests for your mother’s family include ‘mtDNA’ tests which report on a subset of DNA found in the ‘mitochondria’ (your cells’ energy factories), passed down from mother to son or to daughter.